In the summer of 2014, my mom was diagnosed with Early Onset Alzheimer’s Disease. While I usually keep my feelings pretty close to the chest, I’m particularly covert about my experience with Alzheimer’s and what it’s like to be a caregiver. I would go so far as to say that even my closest friends, my siblings, my husband, don’t even know this part of me. This part of me is tender and raw. It’s continuously healing, then being ripped open again.
Alzheimer’s is about so much more than forgetting your keys or misplacing your glasses. It’s personal and heartbreaking. It’s a slow decline, a constant test in patience and understanding. It’s dealt with moment to moment, second to second and, as someone wise once put it, “…is the slowest and saddest goodbye.”
A few months ago I was approached by a dear family friend about an opportunity to write some poetry about my experience with Alzheimer’s, both as a daughter and a caregiver. While I was apprehensive at first, once I got started, I found I couldn’t stop. Words started pouring out of me so quickly that by the time I was done, I felt utterly and completely empty.
Though I’m a writer by trade, I’m very protective of my personal written words and the thought of sharing this poetry with all of you shakes me to my core. These poems bring to life feelings I never thought I could talk about and exposes a part of me I’ve worked very hard to keep private. The reason I decided to share them and have them published in this book is to help bring awareness, help encourage discussion, help shed light on a topic so many of us fear to acknowledge.
The title of this book is I Had a Really Great Title, But Now I Can’t Remember It (Poems for the Older Generation). If you laughed, that’s okay…you should! As we all age and suffer the bumps and bruises along the way, sometimes all we have is our ability to find the humor in it all.
While this is not a book entirely about the Alzheimer’s experience, all proceeds from the sale of this book will be donated to help fund Alzheimer’s research and awareness. For the sake of those fighting, supporting, and protecting, I humbly ask you to consider purchasing a copy of this book. The majority of the poems are written by the wonderful Bill McNulty and I encourage you to also check out his blog (“Still a Poet at Heart”) and the rest of his published books for more of his wise and humorous poetry.
I thank you all from the bottom of my heart for reading this post, for purchasing the book, and for doing your part to help our cause.
Looking for a new book to read? Check in every Friday for a “Bee Happy” post, where I share reviews of books I’ve read or other book-themed lists.